Woodland Pixie Hat Crochet Along – Part Three

Yay, it is Monday, so it’s time for the final part of the fantastic crochet-along Woodland Pixie Hat, a pattern by the brilliant Natasha of Taking a Moment in Time! (Hop on over to her blog for adorable pictures of her hats in action!)

I won’t keep you all for too long, let’s just see the pattern, shall we?

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Part 3:

Row 1: Chain 1, skip the first space.
SC and decrease one stitch, then SC to until there are only two stitches remaining. SC and decrease those two stitch at the end. Turn.

Row 2: Chain 1, skip the first space. SC and decrease two stitches, SC until there are four stitches left . SC and decrease two stitches, turn-

Repeat Row 2 four more times.

Join from the top to midway on the bend .

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To add a border, SC from one end to the other along the bottom edge of the hat with the same colour you used for your starting chain.
Add tassels on the two front corners if you like!

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That’s it! You have finished your lovely hat. Natasha will have a PDF of the pattern available on her blog for those of you who may want to keep the pattern safe.

You can always take a look at Part 1 and Part 2 of the crochet-along again.

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International Angelman Syndrome Awareness Day

This one is important, and I want you to read it. I read blogs, and a lot of the time I do just look at the pictures, I know your time is limited, but you might just change someone’s life.
Today, on the 15th of February, is International Angelman Syndrome Awareness Day. Until very recently we had never heard of Angelman Syndrome, until we came across an article that described our sweet Georgie perfectly, and then we knew. We knew that we had a severely disabled child who probably had Angelman Syndrome. Not a speech delay and a bunch of unique George-isms, but very likely Angelman Syndrome.
We are so grateful for finding out, for knowing, and for coming across a wonderful community of parents of children with special needs. It is a community I never imagined, never thought we would be a part of, and yet they feel like family.

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If we had not come across the article we would not have known.
Angelman Syndrome is a rare neuro-genetic disorder which is often misdiagnosed as autism or cerebral palsy, and in many cases it simply remains undiagnosed.
It is important, life-changing and quite possibly life-saving that children who have Angelman Syndrome are diagnosed, so please let me tell you a little bit about the symptoms of Angelman Syndrome.
People with Angelman Syndrome all are non-verbal and may not be able to say any words at all, though our big George does say bye-bye, yummy, thank you , oh no! and chocolate cake. (That is kind of all you need, right?) People with Angelman Syndrome do have non-verbal communication skills that go far beyond their verbal skills. When Georgie is hungry he will take your hand and walk you to the fridge. He will get a saucepan and spaghetti when he wants to make spaghetti, and he will get milk and sugar when he wants to bake a cake. George understands a lot, he shares his feelings through his actions, he has hobbies, friends, he laughs at funny stories and likes to play tricks on people. He loves to play with Lego and he really loves to bake.
One of the most obvious symptoms of Angelman Syndrome is that people who have it are always happy. They smile really big and fantastic smiles and laugh so, so much, all day long. Pretty much everything is really funny to our big George. I love that.

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People with Angelman Syndrome may have frequent seizures. This is why it is important to diagnose Angelman Syndrome, the right medication and looking out for signs of seizures may save a life.
With Angelman Syndrome often comes excessive drooling and chewing of things, and suck or swallowing problems.
It may be impossible to breastfeed a child with Angelman Syndrome, and later on they may only eat soft foods such as mashed potato.
A wide mouth and widely spaced teeth are commonly associated with Angelman Syndrome, as is an increased sensitivity to heat and sunlight, a fascination with water and a lack of a need for sleep.

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(You look sleepy, mousey!)

If you read this far, thank you. This is the part where I tell you how to help with even more than just spreading awareness.
Right now, George will forever remain severely disabled. He will need life-long care. Right now, our goal in life is to outlive our baby. Think about that for a second. (Though I do try not to.)
But there is hope.
Angelman Syndrome has been cured in mice. Scientists believe they can have a viable therapeutic within ten years, but the one thing standing in the way of that is money. Angelman Syndrome only affects 10,000 – 15,000 people, so there is not a lot of funding for the search for a therapeutic. Angelman Research need only about 15 to 20 million dollars to produce a treatment for Angelman Syndrome. That is not that much. Today I am asking you to please consider not having that fancy coffee, or maybe to walk instead of taking the bus, and donating the money to FAST – Foundation for Angelman Syndrome Therapeutics instead. (Here is the link directly to the donation page.)
You could help change so many lives, including our life, forever.
Thank you.

Posted in Special Needs | 1 Comment

A Parcel for us – Happiness

Recently we have been having somewhat of a stressful time. We are very blessed with so many wonderful and amazing friends who always know just what we need. One of these friends is Emi of Mama Pixie.
Emi knew that we were all in need of some cheering up, and she sent us an amazing parcel full of surprises, love and happiness.

Inside our surprise parcel were some beautiful books full of opportunities to doodle, dream and invent,

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a fabric balloon cover for our Boo, little trinkets and other little surprises and a gorgeous handmade vintage cotton dress for Leela.

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Leela absolutely adores this dress and has already declared that she will never-ever-ever take it off again.
The biggest and most amazing surprise in Emi’s parcel was an absolutely stunning quilt that Emi made just for us.

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It is made up of lots and lots of squares of gorgeous jewel colours and the little ones keep picking favourites and making up stories about where each of the squares came from.

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Receiving a quilt in the post is a whole lot like receiving an actual hug from someone, and I just know that each time we sit on this quilt to colour, each time we wrap ourselves in it to read a story or share a hug, we will be thinking of Emi and of just how blessed we truly are with thoughtful friends who love us so.
Thank you so much, Emi and family.

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